Updates on Little Sam

First of all, thank you for all of your support and love. Through all of your visits, texts, phone calls, dinners, etc. we have felt so loved!! We can't wait to bring Sam home because we know you all will want to love on him even more.

So, updates:

Last time I updated you, Sam was under phototherapy (those blue lights to help his jaundice go away). They took him off of the phototherapy, but he had to go back under for a few days last weekend because his billirubin levels went back up. This is pretty typical, but now they are very low so hopefully he is done for good! So, now Sam is working on 3 things before he can go home: Temperature, Feeding, No Deceleration. 

Temperature: They were slowly weaning Sam's temperature so that he could come out of the isolette. So the nurses would take his temperature every 3 hours. If his temp was 98 or higher, they would lower the temp in the isolette by .5 degrees C. If his temp was 99 or higher, they would lower the temp by 1 degree. So he started with the temp in the isolette at 31. It took it a while to be lowered to 27 (which is the goal), and once he got to 27, he had to stay in the isolette in maintenance mode for 24 hours. He was able to do that! So, he was moved to an open bed where he would be fully maintaining his own body temp with no warming action. 

Feeding: Sam was doing every other feeding by mouth (either breast or bottle) and he was doing SUCH a good job! They decided to increase his feeds to all by mouth (which is a pretty big deal). He was having to work harder to get his food since he had to use all those muscles every three hours. A nurse in the NICU told me that a baby feeding was equivalent to him running a mile. It's tough work..no wonder he would fall asleep afterwards!

No Deceleration: Sam has to maintain his temp and feedings with no deceleration in his heart rate or breathing.

He was doing all of the above and doing a fabulous job until yesterday. Yesterday was a BIG day. Sam was able to transition to the open bed, all mouth feedings, and my sweet little boy was circumcised. Talk about a rough day for such a little man! Needless to say, Sam was tired from having to work so hard to keep his temp up, eating, and from the exhaustion of the surgery. So, he didn't eat very well at his 3 pm feeding. He only ate about 18 out of the required 35 cc, and at 6 pm he only ate 28/35cc. So, his feeding tube had to be put back in as a precaution. His nurse did tell me that at 9pm he ate 40/35cc and that she hasn't had to use the feeding tube at all! He has done really well all day today too :)

He also had to go back in the isolette because his temp got down to 97.2. He has to stay between 97.5 and 99.5. So, we started the process of weaning and maintaining all over again. He was able to be weaned to 27 degrees at noon today. So, he will have to maintain his temp until noon tomorrow. Then, he can be put in an open bed and will need to maintain his temp for 48 hours.

He also has to pass a car seat challenge. Sam will sit in his car seat for 1.5 hours to make sure that he maintains his temp and has no decelerations.

Once he passes all of these tests we will be able to bring him home...It seems so close, yet so far away! I'm glad he is getting great care and we aren't in a hurry for him to come home because if something were to happen, and he had to go back to the hospital, he couldn't go back to the nicu, he would go to pediatrics...and we don't want that. So, he can take his time because that means that when he comes home, he is home to stay. 

Please continue praying for our little man, all of the nurses and doctors taking such great care of him, and for our patience as we anxiously await his homecoming.